My Breast Cancer Journey

October 16, 2005--I'm having the willies today. Tomorrow I go back to work, and I can't pretend that I'm not scared. Scared if I can actually get myself up, showered, dressed, and made-up and driven in to town to the office. Lee assurres me that I can do it, and I just have to believe that I can also.
I had a particularly bad day on Friday the 14th. The next day after the chemo infusion, I was given an injection of Neulasta to keep up my white blood cell count. The side effects were mild to moderate bone pain, which I expected to happen, if it did at all, within the first 48 hours or so. After experiencing no difficulties by Tuesday, I thought I was home free on that. Then, on Thursday evening I started feeling strange and having unexplained pains in various places. I was scared silly that I had come down with some kind of an infection, but my temp never got up to the magic 100.5°. I spoke to my oncologist's nurse a couple of times on Friday and she explained to me that I needed to take more pain meds and that the Neulasta really doesn't do anything until the white cell counts start to drop, and then it causes the production of white cells. That is where the pain comes in. By Friday afternoon my sternum and femur bones were throbbing. I took 2 vicodins and the pain subsided. By Saturday it was pretty much under control, and today, Sunday, I have only taken naproxen for pain. Next time I'll know what to expect.
My appetite has stayed good, too good sometimes. I know I have put on weight. Dang, I thought I might lose a few pounds through this ordeal, but it looks like I'm going to have to go on a major weight loss thing when I get through with the treatment. The first day I was off of the steroids, which would have been Tues. the 11th, I was positively ravenous. I was lying on the couch whilst visions of cheeseburgers danced in my head. I can't eat much at one time, but I do eat several times each day. I also continue to take Ativan, which, although a tranquilizer, is also good for nausea, which I really haven't had. I'm assuming the Ativan is addressing that.
My sweet cousin Julie sent me a package with makeup items and a wig. I immediately called her to let her know it had arrived and to express my appreciation for her kindness and support. This experience has aged me about 20 years in the last 3 months, and I'm going to need all this makeup to make myself look human again. My hair hasn't started to fall out yet, but my scalp feels quite strange, itches a lot. I suppose that is to be expected. Although one can always hang on to hope. Julie didn't lose her hair when she was being treated for breast cancer 11 years ago, but she wasn't on the same protocol they have me on. The wig feels odd, if I use it, I'm going to need a little cap to put on under it, for comfort. I may just have to go with scarves.
I missed my group support meeting this past week. My implant was giving me a lot of discomfort that day, and I just couldn't abide the thought of driving 45 minutes through rush hour traffic to get there. I really did hate to miss it, but I did let Ray Ann know that I wouldn't be there. They had asked that we let them know if we had to be absent.
I'll try to keep here a little better than I have been.

October 17, 2005--I don't know why I was so concerned about today. I felt "nearly normal." I told Stefanie that it's been so long since I've felt normal, that I don't quite know what that feels like. But I do believe that today approximated normal. I spent an inordinant amount of time putting on my makeup this morning. Without it, I do look much older and haggard that I did 3 months ago. It was fun to try out the new stuff.
It was good to be at the office, with my work-mates. Perhaps I came on a little more chipper that I actually felt, but that's okay. They always tell you in recovery programs to fake it till you make it. Well, I'm in a recovery program of sorts, even though the 12 steps are not a formal part of it. After working all day, I had the energy to stop off at Target on the way home, and then walked the dog for 30 minutes or so after I got home. It was great. My neighbor, Nelda, went through treatment for lung cancer a few years ago. I got to visit with her for a little while. That woman is such an inspiration to me. She is the only person I know that has beaten lung cancer. Her treatments were much different than mine. She said her infusions took most of an entire day. She would be sick for 3 days every time. Then she would go back to work. I had always known that she was a dynamo, but if there was ever a question about that, her attitude and fortitude through her treatments erased all doubt.

October 20, 2005--The first 3 days of the week went swimmingly. Today started out okay, but around 4:00 this afternoon I started feeling a little rocky. I guess I can't expect to feel wonderful all the time.
I had a visit with my plastic surgeon, Dr. Montero, yesterday, thinking I would get some more saline solution injected into my implant. She thought it would be best to wait another week so that my white cell count would possibly be higher, as it is probably at the nadir right now (lowest point).
Today my hair seems to have decided to give up the ghost. It left like I had an ant hill under my scalp for awhile. I found out my insurance will pay for a wig. Yippee! I called a wig shop and will try to get there tomorrow. I also have to have blood work done tomorrow to see what my counts are.
I had purchased some beef liver from Whole Foods Market and cooked it tonight with onions. That's one of those dishes that people either love or hate. I guess you know where I fit in. It was so good! I hope it tastes as good reheated. My oncologist won't let me take any vitamin A, so I thought this would be a good thing to do. It just seemed like my body was craving all the good stuff that is in liver. I made to sure to get the best I could find, since the liver in regular grocery stores is probably packed with hormones, antibiotics, and God knows what else.

October 22, 2005--I made it through an entire week of work. Yippee! And to think I was so scared that I wouldn't be able to do it. Yesterday I got blood work done and all my counts looked good. That made me happy too. Then I dropped by Pat Painter's Wig and Hairpiece shop. Bonnie waited on me. She is an absolute hoot and I had a great time with her. She put 3 different wigs on me, all silver, of course. I think I would look silly now in any other color, since I am used to seeing myself with silver hair. I made an appointment with her for next Wed. to shave my head and fix up the wig I want to suit me. I also bought a couple of beautiful scarves. I'm ready! As bizarre as this sounds, this is all kind of exciting to me. Well, it's inevitable that I'm going to lose my hair, I may as well make the most of it.
Which sort of brings up another topic. I don't mind having lost my right breast. I never liked it that well anyway. After Dr. Montero gets through with me, sometime next year, I'm going to have a much smaller bosoms than I used to have, and they're going to set up higher than my old ones ever did. My neighbor Nelda said I'd probably be showing them off in a bikini. I wouldn't go that far! But I'll bet it will be easier to get clothes to fit me.
I'm just so happy to be alive today. Fall has come, the morning was nice and cool with low humidity. Belle (my dog) and I went for a walk up the hill and back down for about an hour. Thank you Jesus!

Ocober 27, 2005--Here I sit, wondering what tomorow will bring. It will be my second chemo infusion. I'm just hoping so much that it goes as well as the first one.
Yesterday was a big day for me. I went to the wig shop, had my head shaved, actually she used a clipper on me, and got my wig. It was an interesting experience. I was a little freaked out about it, but not bad. The wig stylist, Bonnie, is so much fun that it made it a lot easier for me. It is rather shocking to see myself with no hair at all. I learned that I have this perfect little round head, that looks exactly like it did when I was a baby and just like my dad's did. He went bald at a young age, so I am very familiar with what his head looked like. In fact, I look like my dad in drag.
The wig feels strange on my head, kind of like I've got a dead animal perched on my cranium. I'm afraid it's going to come off, or get crooked on my head, or something. I wore it to work today, and everyone says it looks very natural. Perhaps I will become accustomed to it and it won't feel so strange. This afternoon when I got home, the first thing I did was to take that thing off and put a scarf on my head. That felt a lot better. My sweet mother-in-law had sent me several scarves and I used one of those. It is black with red and pink and looks fabulous, IMHO.
I asked Lee last night if he wanted to see me sans a scarf or anything and he bravely volunteered to look. He didn't freak out, thank God. Stefanie told me on the phone that she doesn't really want to see me bald. That's fine. I probably won't run around without a head covering very much anyway.
Yesterday I also went to see Dr. Montero and her nurse Danielle. They infused some some saline solution into my Frankenboob. That will be the last one I receive and probably won't see them again until after I finish chemo. I've come to love them, so I sort of hate that I won't be seeing them for such a long time. Next spring Dr. Montero will put the finishing touches on Frankenboob and then do a reduction on the left breast so they will match. Yay! I won't have to haul around humongus boobs any more.
Today I was in some discomfort because of the additional saline solution. The thing is under my chest muscle, so the muscle has to stretch out a bit each time, and that can be unpleasant.
I want to thank all of you who have sent cards, called, and prayed for me. Please keep it up! I need all that now as much as ever. Love y'all..

October 29, 2005--I found out the hard way that the 2nd chemo infusion is different than the first one. I feel like hammered crap today. I haven't vomited, or even been particularly nauseated, just wiped out. Lee took me into town this morning to get a shot of Neulasta. That's the stuff that keeps the white cell count up, and can cause bone pain. The first infusion had me spoiled. I thought I would just sail through the rest of them too, but evidently that is not the case. I'm hoping to be able to return to work on Monday the 31st. I guess time will tell.

October 31, 2005--I guess this is where the rough stuff comes in. Yesterday was just the worst. I have never felt so wiped out in my life. In the afternooon I talked to the dr. on call for Southwest Regional Cancer Center. He advised me to go to the e.r., which we did .Lovely. Lee and I were there for about 6 hours. My blood work was fairly normal. The white cells were elevated, but that is a side effect of the steroids. My sodium was a tad low, but that was the worst of it. I believe I was dehydrated, in spite of my trying to drink as much water as possible. They hooked me up to an IV drip that didn't. After about 2 hours we got a nurse to notice and she flushed out my port and got the thing moving. My thighs had started to hurt, so I asked for a vicodin. We finally got out of there. Poor Lee was nearly as exhausted as I was.
Today Stefanie came and spent the day with me. I think she was pretty upset about me, and it was good for us to spend the day together. We watched a couple of movies and snoozed. I felt well enough this evening to walk the dog for a little bit and fixed a bit of supper. My appetitie has been pretty good today, probably thanks to the steroids. I am hoping and praying that I am able to return to work tomorrow.

 

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